Memphis to Denver – a stutterer and a lunar eclipse

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Downtown Memphis

Again apologies are due for the tardiness of this latest posting – I had wanted to write at least once a week but our schedule has proved to be really tight, and even in the few days that we get between filming it has been difficult to find the time to reflect on our experiences. We have just arrived in Aspen Colorado, where Jane’s brother lives with his wife Ruth, and at last a moment to relax.

Thank you to all who sent good wishes for my mother’s recovery – we are pleased to announce that she has sailed through what was likely to be a life threatening operation to fix her hip, and is now safely back in her room at her care home.   At 98, she remains a tough old bird and although she has told us many times how she would like to depart this world, her body seems to have other ideas.   In a sense then we can breathe again and concentrate fully on our own version of life and death.

We have now covered over 4000 miles and filmed 9 different stories.   We’ve posted a short account of all but the latest ones on our Photo Stories pages.

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Mural in Memphis

In Memphis we had the privilege and honour of staying with two of the kindest, most compassionate as well the most informed non–bereaved parents we have met. Kathy Story and her husband Dr Bob Neimeyer have two boys, both now grown and living full and productive lives. How Bob comes to know so much about the psychological affects of trauma and grief is a wonder. But he has spent a life time studying, writing and counselling about the subject and is considered one of America’s foremost authorities on how we build meaning again in our lives after tragedy.

It is common currency among many bereaved parents that nobody, but nobody, can understand what it means to suffer the death of a child unless they have themselves known that loss. I have sense that this supposition is actually a way of defending our grief from the outside world.   So many bereaved parents feel isolated and shunned by those who for many reasons are afraid to engage on a truly meaningful level with the trauma and the pain that we are going through. Chief among these might be the recognition that life really is fragile, that those we love the most could disappear in an instant, and that we might not have the emotional wherewithal to face up to something we truly have no control over. A bereaved parent has discovered this in often the most tragic of circumstances and it is possible that many will want to hold onto this knowledge as their own special access to true meanings about life and death. I suspect I do this myself … you cannot know my grief and I don’t have the words to try and explain it and the gulf that may come between us is nothing compared to the infinite chasm between me and my boy.

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Bob Neimeyer (left) with some of his students as they listen to our presentation.

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Psychology students at the film screening

It is easier for us to commune with other bereaved as no words need to be spoken to know each others grief. Harder for sure to speak to a group of students Bob Neimeyer had assembled on our second night in Memphis.  We showed our film about Josh’s funeral and Say Their Name, the video we had made for The Compassionate Friends. But it was also important to share our story and to talk about our grief since Josh died in order for these young twenty somethings to appreciate the ‘real life’ experience of parental bereavement. We thought and expected to be the teachers but it seems that any learning is two way thing – this email was sent to Bob after his class

I found the visit from the parents who had lost children deeply informative and intensely affecting. … I’ve (not) experienced a loss that was traumatic and neither am I a parent. It was not so much that I could relate to their loss but to the after effects of that loss. The life they were describing was quite close to the life of a stutterer.

 Something that comes up again and again in therapy is a deep seated sense that by stuttering we are burdening others. Our stuttering takes up people’s time and is hard to listen to. I’ve had clients express gratitude when people listen to them at all because they feel society should not have to be burdened by their speech; that is, they feel people have every right to walk away from them when they start talking. This experience was exactly described by the grieving parents. Their grief was a burden on others. They felt like they couldn’t talk about it due to societal norms. Just as the stutterer tries to avoid stuttering the bereft parent must avoid talking about their child. They must avoid telling people how they’re really doing.

 This requires mental gymnastics that are not only exhausting but ultimately counterproductive in addressing both grief and stuttering. The example that Jimmy gave of telling the barber he only had two children hit my like a bolt to the chest. … The shame Jimmy experienced for betraying Josh is similar to the shame a stutterer experiences when they twist the truth to avoid stuttering…”why did I just do that”, “why am I such a coward”, what is wrong with me”.

 Maybe its because we are now four and a half years ‘down the line’, but I think that even if I have not yet come to accept Josh’s death as really real, I do think that I have begun to accept that my grief is not that unique.   The intense pain and solitude occasioned by our loss, has softened, in large part by listening to others stories and I would hope that its precisely in that sharing both by the bereaved and the non bereaved that I can find a new kind of happiness again.

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On our way from Memphis to Denver and courtesy of our allegiance to the AirBnB mode of hospitality, we stayed overnight with a Beachy Amish family.  The Amish as you may know live a particularly frugal and devout life, believing that it is God alone that provides for his children.   This was the night of the eclipse of the full moon and they invited us to share their evening with a ‘cook out’, an opportunity to meet their six children, two grandparents and other members of their congregation.  As we sat and watched the earth’s shadow slowly covering the moon, the family broke into songs praising the lord for all his bounty.

There followed a long and in depth discussion on the nature of the universe, God, the purpose of life and death and various belief systems.  Here we were, total secular aethists conversing with folk whose whole essence and life style is based on the literal truth of a book written thousands of years ago.  We even shared a joke about how crazy it would be if Jesus’ second coming should occur on this night of all nights. But starting from the big bang and the origin of all things, it was clear that divine authority would always trump whatever mundane theory we could come up with. So far so good, we could respect and honour each others differences. Interesting then that our own ‘death’ story never entered the conversation. We never mentioned Josh and maybe like the ‘stutterer’ we didn’t want to be a burden on our hosts.   Shame.

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Click on the image on the right to view more photos from our stay with the Amish

Thanks for reading

Jimmy (October 2015)

 

 

 


Stories and contributors we have filmed during this part of our journey

GG159530(300) Gayle’s Story – Memphis, Tennessee

heather on porch(300) Heather’s Story – Memphis Tennessee

By |2018-02-14T15:05:52+00:00October 3rd, 2015|Jimmy's|8 Comments

8 Comments

  1. Hilary 4th October 2015 at 9:17 am - Reply

    Interesting reflections Jimmy. Because of my own experience I have thought a lot about the parallels with the grief/distress of parents of children/young people with enduring mental health problems or severe disablement and that when the child dies. They are both bereavements, but with different nuances. They both entail the loss of the child/young person as we had known them, the death of dreams, planned futures, maybe the next generation. Both bring regrets and sometimes guilt. They both bring real difficulty in terms of social exchange – the dreaded ‘how many children do you have and what are they doing’ questions – the answer that one is in a psychiatric hospital probably as challenging/’unacceptable’ to deal with as a death. Of course there is a finality to death which is not mirrored with mental ill health, and for some parents there will be hope that their child will ‘recover’ or at least find ‘lesser’ goals to aim for to live a life that is in any way fulfilling. On the other hand there is the ongoing anguish as to what to do for the best for that young person – there is seldom a ‘right way’, and often continuing distress as another cycle of depression or psychosis is encountered.

    Maybe in the end empathy is about the attempt to connect to someone else’s distress or grief through other experiences one has had. The distress may not be dressed in the same clothes, but underneath the raw nature of loss may be similar.

  2. connectedlight 4th October 2015 at 8:41 pm - Reply

    Hi Jane and Jimmy,so Emily lives on-I am not sure whether to be glad or not for you, just because I having watched my aged aunt lie in bed without recognising anyone for the past 10 months my conclusion is that society has the weird crazy attitude to death . I am following your posts and the stories –makes for very thought provoking reading.You say it well-its unbearable to be conscious of this fragility outside and in. love Suzanne

  3. John 8th October 2015 at 11:44 am - Reply

    Hi Jane and Jimmy
    I’m continually moved by the depth and unexpected revelations of your journey. I was particularly moved Jimmy where you talked about how grief reveals how fragile we and life are. You are meeting such wonderful people which must be sustaining you in your journey. I look forward to the documentary. Much love John

  4. Kelly Anglin 11th October 2015 at 6:25 am - Reply

    Jimmy, I am deeply moved by the eloquence and pure honesty of your words. My brain, because of severe trauma and intense grief, is unable to fully make sense of all that I am learning in my own grief journey. But I know that the time is coming when I will be able to articulate all that my heart and soul is longing to tell the world. It is deep inside me. And I am both fearful and compelled to share our deeply excruciating experience of losing our sweet, sweet son Jordan. I know that I, too, will find the courage that you and Jane have found. You both inspire me. Thank you.

    • Jimmy (Josh's dad) 11th October 2015 at 3:00 pm - Reply

      In truth Kelly, you Dan and Taylor are the inspirations. I know that it is almost impossible to comprehend what is going on for you not a year yet since Jordan died let alone convey your feelings to the outside world, But that is what you have done by speaking to us on camera, and with such eloquence too. We are of course much further in our grief than you, so it may appear that we are more settled, calmer, more accepting and that may also give the impression of being somehow wiser – but I have to say it doesn’t feel like that. We are learning such a lot on this trip – in particular the need for the kind of openness that you have shown and the importance of tears – to let them flow as often as need be and without shame. Yesterday at the Grand Canyon I shouted Josh’s name long and hard into the chasm – and I broke for the first time in weeks. In a strange way, I think you have given me back my tears. xxxx

    • Jane (Josh's Mum) 11th October 2015 at 3:04 pm - Reply

      We were blown away by our time with you…..I will write more soon as we filming today and full on ….. but for now thank you for opening your hearts…….truly inspiring Jane x

  5. Jane (Josh's Mum) 11th October 2015 at 10:22 pm - Reply

    A STUTTERER AND A LUNAR ECLIPSE…………Huge thanks for such an interesting and helpful perspective from Chris who attended our film workshop led by Robert Neimeyer at Memphis University and who has struggled with navigating being a stutterer throughout his life:

    ‘………. something that comes up again and again is a deep seated sense that by stuttering we are burdening others. Our stuttering takes up people’s time and is hard to listen to. I’ve had clients express gratitude when people listen to them at all because they feel society should not have to be burdened by their speech; that is, they feel people have every right to walk away from them when they start talking. This experience was exactly described by the grieving parents. Their grief was a burden on others. They felt like they couldn’t talk about it due to societal norms. Just as the stutterer tries to avoid stuttering the bereft parent must avoid talking about their child. They must avoid telling people how they’re really doing……..’

    I was blown away be the enthusiasm and eagerness of all the participants to better understand what parental bereavement is like from the inside out as well as their interest in our films and proojects.

    Thank you one and all!

  6. Kelly Anglin 12th October 2015 at 6:22 am - Reply

    What an awesome experience to shout Josh’s name into such a space! Your heart must she been so full and feeling as if it might explode! I am am so glad that you allowed yourself such an experience. Very courageous and what that freedom must have been like! We continue to hold you and Jane in our thoughts and prayers on your journey everyday.

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